I gots options. At least that’s what the Guru told me the other day. That and I have a new tumour, sorry “lesion”, in my right arm. Otherwise the MRI showed marked improvement. Explains the pain in my shoulder and elbow. Minor.
Now for the options. Remember when I said I was going to miss Thalidomide? Uh uh. They are keeping me on that. I could try a stem cell transplant with my own. They are skeptical that they can harvest any. Or, I can try a transplant with my brother’s. The infamous Plan B. Or, I can try to get access to a new trial drug, which through all indications would work. Or, I can go on a maintenance chemo therapy. Specifically, the drugs I was on, in lower doses and minus the mustard gas. Finally, there is a novel therapy coming to trial next year that looks interesting. Imagine! Next year. Five months ago they weren’t sure I was going to get through the summer. Now they are talking about next year.
The crappy part is I have to make a decision. It’s been simple up to now. Take everything they throw at you and get on with it. No decisions, no chance to make a mistake. I’m still alone in this so I have no one to blame if I screw it up. Two things – I am getting tired of pills and I want to shorten the list. So, I have set the wheels in motion for harvesting my own stem cells. I have to have a line put in. Once that is in place, it’s two weeks of fun. Then it will either be go or no go.
The Guru thinks maintenance chemo is the best option. I am such a good listener. My hearing is shot, so I think that is what he said.
It’s easy to get all bent out of shape over stuff like this, till you get humbled by hearing of other people’s struggles. Like the family that lost their home and everything in it to fire. Or the family dealing with the tragic loss of a child. The mother trying to keep a family together. People facing financial ruin. Cancer’s easy. Life is hard. I can only offer one piece of advice. It’s what gets me through. Don’t get overwhelmed by the big picture. Break it into small pieces. Then put your head down and step by step fix one piece at a time. Enjoy each little victory and move on. Never stop moving on.